July is Disability Pride Month. And I could write some empowering piece about how I make my life work even though fibromyalgia and I’ve got all these things that don’t work in the ways bodies and brains typically do and rah rah rah. I know how to write about Pride. I’ve done plenty of it,…
Tag: disability
Coming out versus Letting In
It’s the end of Pride Month. Usually I’m overflowing with words about queer topics, especially in June. I had a year of queer rage in 2022. And 2023 has me filled with even more rage. And yet this month, when I should have been able to say something I’ve had trouble saying anything. Every time I…
Pride is for… ?
I began June not with celebration, but with tears. “Happy” Pride, right? Who the fuck thought I would be watching a TV show with a character who was wearing overalls and I would absolutely breakdown in tears? And now, I’m alternating between writing and ugly crying. And the makeup I put on earlier today is a mess…
I’m Officially Disabled Now; Where’s my Prize?
Update on the Sydney Beers Story–Remember? The Wheelchair being Pushed Down the Stairs? Anyone? I really don’t follow hockey. Definitely not NCAA hockey. But Carson Briere’s name has popped up on my various news notifications for the last month or so, ever since the wheelchair incident. So I saw the news that he’d been removed…
Of Fauxpologies and Wheelchairs
For the second year in a row, my plans to use World Poetry Day to actually talk about poetry and to talk about our 30 Days, 30 Poems Project–one of my favorite things I get to work here. Once again though, something has happened that has focused my attention elsewhere. A year ago, instead of…
Spoonie Life and Sporkie Workarounds
What is Spoon Theory? What is a Spoonie? I’ve been candid about my neuro-atypicality and mental health, and about some of the details about life with chronic illness and chronic pain. Adam’s been candid about his own challenges with mental health and neuro-atypicality, too. We rely on the Spoon Theory a lot, checking with each…
Pain and Palliative Care
COVID: Another Source of Pain… and Anxiety So after nearly 36 months of working so hard to avoid COVID, I’ve got the spicy cough. I’m not actually coughing too much, but I’m congested, I’ve got itchy eyes, I’m aching everywhere and I’m exhausted. Those last two things aren’t all that unusual. Aches and exhaustion are…
Thank you for your Support
Dear 2 Rules Readers, Friends, and Followers: As you know, we make a big deal about self-care here. It’s so important to our work as writers and teachers, but also to being ourselves, and being able to be the best versions of us that we can. And a number of weeks back, some things happened that…
Talking Trash: Disability and Chores
There are tasks we assume short people will have trouble with. At just about five feet tall, I have plenty of experience there. But taking out the trash was never on the list of things I expected my height to cause problems with. It probably wasn’t on your list of short-people-problems either. About ten years…
On Personal Independence
I’m writing this with fireworks exploding in the background. My neighbors like extended holiday celebrations. It’s been going on for days–just like the two weeks of fireworks around Christmas time. I suppose they’re celebrating independence. I am not feeling so much like celebrating independence right now. National Issues of Personal Independence Sure, there are all…