I bought peanut butter today. Buying peanut butter is nothing new.I love the sticky smooth feeling as it moves through my mouth, The way it lingers a moment longer than I might want it to, how that takes me backTo memories of beach parties with my big brother, how I proudly made lunch for him:two…
Tag: disability
“When the Future Appears”
Remember, the time of year when the future appears like a blank sheet of paper -Jackie Kay “Promise” “Five hundred twenty five thousand six hundred minutes…” -Rent “Seasons of Love” Theater kids, or at least theater kids of a certain age know exactly how much time that is. Maybe you know even if you weren’t…
Mornings
Late to rest, early to rise, she gets bored and her old hips have got nothing to do. She carves a single notch on the baseboard each and every time she dreams of you. Thick-mattressed, four-posters are for lovers. She gave away your bed to the neighbors, and now their dog sleeps atop the covers….
Disability Wrath Month
July is Disability Pride Month. And I could write some empowering piece about how I make my life work even though fibromyalgia and I’ve got all these things that don’t work in the ways bodies and brains typically do and rah rah rah. I know how to write about Pride. I’ve done plenty of it,…
Coming out versus Letting In
It’s the end of Pride Month. Usually I’m overflowing with words about queer topics, especially in June. I had a year of queer rage in 2022. And 2023 has me filled with even more rage. And yet this month, when I should have been able to say something I’ve had trouble saying anything. Every time I…
Pride is for… ?
I began June not with celebration, but with tears. “Happy” Pride, right? Who the fuck thought I would be watching a TV show with a character who was wearing overalls and I would absolutely breakdown in tears? And now, I’m alternating between writing and ugly crying. And the makeup I put on earlier today is a mess…
I’m Officially Disabled Now; Where’s my Prize?
Update on the Sydney Beers Story–Remember? The Wheelchair being Pushed Down the Stairs? Anyone? I really don’t follow hockey. Definitely not NCAA hockey. But Carson Briere’s name has popped up on my various news notifications for the last month or so, ever since the wheelchair incident. So I saw the news that he’d been removed…
Of Fauxpologies and Wheelchairs
For the second year in a row, my plans to use World Poetry Day to actually talk about poetry and to talk about our 30 Days, 30 Poems Project–one of my favorite things I get to work here. Once again though, something has happened that has focused my attention elsewhere. A year ago, instead of…
Spoonie Life and Sporkie Workarounds
What is Spoon Theory? What is a Spoonie? I’ve been candid about my neuro-atypicality and mental health, and about some of the details about life with chronic illness and chronic pain. Adam’s been candid about his own challenges with mental health and neuro-atypicality, too. We rely on the Spoon Theory a lot, checking with each…
Pain and Palliative Care
COVID: Another Source of Pain… and Anxiety So after nearly 36 months of working so hard to avoid COVID, I’ve got the spicy cough. I’m not actually coughing too much, but I’m congested, I’ve got itchy eyes, I’m aching everywhere and I’m exhausted. Those last two things aren’t all that unusual. Aches and exhaustion are…